As we mentioned in a previous blog post, we are so happy to have met Brian and Denae McCoy. They experienced a similar situation to us and have turned their personal tragedy into something positive as well. When they had to say good-bye to their little girl, they did so in a cold and sterile hospital room setting. Their fundraiser, “The Butterfly Effect” Sporting Clays Shoot, supports the NICU Palliative (pronounced pal-lee-uh-tiv) Care fund.
NICU Palliative Care specializes in the relief of the pain and other distressing symptoms associated with serious life altering illness in Neonatal infants. The goal is to prevent and relieve suffering and to ensure the best possible quality of life for patients and their families. It is appropriate at any state of an illness for patients of any age and can be provided at the same time as a curative treatment or during a transitional period.
Palliative Care Services will:
- Focus on patient and family needs and goals of care
- Optimize comfort with safe and effective management of complex and changing symptoms
- Provide patient/family support for making difficult decisions
- Assist patient transitions to and appropriate level of care
- Comfort the patient and family facing a loss
- Support best quality of life, and if not life, a peaceful dignified death
It’s never fair for a parent to have to say goodbye to a child; however, if the unthinkable happens as it did for us and the McCoys, there are ways to make the loss and transition easier. The McCoy’s decided no parent should have to say goodbye to a child in the manner they did. They created “The Butterfly Room” at Texas Health Forth Worth Neonatal ICU.
This room is calm and peaceful being decorated and set-up much like a home nursery would be. When a loss is experienced in the NICU, parents never get to take their child home from the hospital. “The Butterfly Room” helps make that reality of their child never being in a home nursery, a little easier.
Please mark your calendars for October 3rd at the Lone Star Shooting Range (3355 U.S. 67, Glen Rose, TX) to support “The Butterfly Effect” Sporting Clays Shoot.